Monday, January 14, 2013

Day +341

It was decided.  Timothy will discontinue his oral steroids starting tomorrow.  He has been taking this since his transplant.  A part of me is so glad he doesn’t have to take steroids anymore.  Steroid is not for long-term use.  It has a lot of side-effects, both immediately and in the long run.  But at the same time, not knowing exactly why he was on it for so long makes me very anxious.  We know his lungs needed it and allowed him to breathe comfortably.  But the cause of the lung damage is unclear.  All I can hope is that his lungs are healed and ready to be off steroids.  Last time he was weaned off completely, he was back in the hospital within 4 days.  Before that, it was within 2 weeks.  Would you pray with us that Timothy will be okay without steroids and his lungs are healed?  I know this is a necessary step forward and a good one at that.  But I have a hard time putting my guard down, not knowing the future.  What I remember vividly is how I felt last time.  It was emotionally very difficult for me.  Please pray for me as well.  Whatever the outcome, I want to be thankful and handle it well.  Thank you…

5 comments:

  1. My prayers are with you and Timothy. -Yvette-

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  2. Praying for you all!!! Love you guys.

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  3. Prayed for mercy and healthy lungs for Timothy tonight...God will be faithful Alice, hang in there! So glad you guys were able to enjoy Legoland, what a big milestone! Keep us updated...

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  4. Praying for your family tonight. Praying for healthy lungs and a steroid free life. Praying for short emotional memory for Alice. Praying that you all will have ongoing trust in the One who began a good work will be faithful to complete it.

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