“Trust in the Lord with all your heart and do not lean on your own understanding. In all your ways acknowledge Him, and he will make your paths straight.” Proverbs 3:5-6. I read these verves today and what a comfort it brought to my soul! To trust, to not rely on self, to acknowledge… it brings freedom and liberality. It takes the burden off of me. My kids trust me to provide them with all their needs and I in turn trust God to provide for me with all I need. Life is bearable. It is satisfying beyond my understanding. I was created to depend and trust and not do things on my own. This has been an ongoing lesson for me, especially through our experience with Timothy’s sickness and healing. Some nights, I sit back and sort through the past 2 years of memories. There have been some heart-wrenching times. But these days, there are a lot of joy and laughter. To see my son healthy and happy is incredible. I often wonder how this experience will affect our lives in the future. Only time will tell.
It is day 91. Though next week we will hit day 100, realistically, we will be home early June. Timothy’s doctor wants him weaned off the steroids before we leave. We decreased it a bit again today. We had a repeat chest x-ray and it is normal :). He is still 100% donor cells :). We are excited to go back home soon, yet sad to leave Houston. We have met so many wonderful people here. There are many things to take care of before we leave, but unlike my usual self, I haven’t been concerned with all the planning. It will all work out. Upon our return, we will continue our post-transplant care at CHLA (Children’s Hospital L.A.). I was anxious about going back, but I was reassured Timothy’s current doctor knows the transplant doctor in CHLA. What a relief! We will continue to follow-up with TCH (Texas Children’s Hospital) every few months than eventually annually.
Though 100 days will be a big milestone, Timothy will have to be very careful for about a year. That means he will still be in social isolation for a while even when we return home. Please continue to pray for us as we prepare for the next phase of Timothy’s health and recovery.
wow..almost 100 days! Early June?? I'm excited to see you guys =) Glad his checkups are all normal. Miss you guys so much.ReplyDelete
Congrats on your huge milestone approaching! I'm so happy Timothy's transplant was successful and that his lungs continue to be clear. He is such an amazing little boy with an incredible mother.ReplyDelete