It’s been a while since I have last posted an update. Things have been pretty quiet around here :). Timothy has been feeling well and have been stable. His Hgb continue to inch upward without any medications! Yay! It’s currently at 10.9. His platelets are still dependent on the weekly shots. We have decreased the dose, but it seems like he may need the higher dose. His platelets have gone down this past week. And we are at 127. Not bad, but not great.
Other than the medical update, we are officially on summer vacation mode. Claire has graduated from preschool and will be entering kindergarten in the fall. She does not look forward to this change and says she would like to stay in preschool forever. But I am pretty sure she will love kindergarten.
During her graduation, she skipped, waved, smiled and entertained :). She has become very social this past year.
Congratulations to your very first graduation, Claire!
We also had a party for Timothy. To celebrate Timothy’s medical journey in his short life, we gathered with family and friends. This was our way of saying thank you. As I look back, our time in Houston seems like a decade ago. Though some of the memories are vivid and clear, some are fading away. Some things will be forever etched in my mind and others are becoming a distant memory. There are some things I will never take for granted and some things I will probably have to look back on this blog to remember. I am so thankful to be where we are. The outcome could have been very different, but we are here and Timothy is in health and happy. My heart swells with gratitude. When I look at Timothy, I cannot but smile. Each time I kiss his cool fever-free cheeks, very few things can match the satisfaction and happiness I feel. I know his life will always consist of doctors and hospitals, but for now, we enjoy the present.
Here are some pictures… enjoy!
The theme was Oh, the Places You’ll Go! by Dr. Seuss.
Notice T’s teeth… on a side note, he needs major dental work soon :(.
Thank you to everyone who made this possible!!! And to Timothy… to all the places you’ll go… we celebrate life!