Monday, November 19, 2012

Day +285

Today’s appointment went very smoothly :).  During the vitals, I must admit, I was very nervous when they checked the pulsox.  The oxygen saturation should be in the high 90’s.  When it dips down to 80’s, we could be admitted.  It started reading 88 and wouldn’t go up for a few seconds.  I was getting nervous.  Then it slowly started going up until it reached 98.  It was a huge sigh of relief when I saw that number.  The doctor listened to Timothy’s lungs and they were clear.  His cough is most likely something viral and not his lungs acting up.  We weaned his steroid dose once again and this will be the lowest it will go ‘til he is completely off.  The next thing is to get his cortisol level checked to make sure Timothy is producing them on his own.  Our next appointment is in a month!  But we do go back next week for his EKG and echocardiogram.  Please pray with us that Timothy will be off his steroids without any complications really really soon.  Thank you!


  1. whoo hoo! So glad the appointment went well! Will pray that there will be no complications.