Wednesday, April 10, 2013

Home Again

We were discharged last night.  It’s nice being home.  Before being discharged, Timothy had a bone marrow aspirate and biopsy.  We are still waiting on the results.  As soon as Timothy woke up from the anesthesia, he ate like a madman.  Usually, you wait until you can tolerate water or juice then afterwards you are allowed to eat.  Well, Timothy could not wait.  He devoured 5 chestnuts (whole) and about 5 walnut pastry balls (most of you know what I am talking about, right?) at the recovery room.  And as soon as we got back to our room, he ate 2 slices of sausage pizza, couple bites of hotdog, and 3 whole tangerines.  Yes, he was very hungry.  He was very happy afterwards :). 

Timothy stuffing his face at the recovery room… maybe 5 minutes after he woke up.

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Many of you are wondering how he is feeling and we are so grateful for your concern and prayers.  Even on the day Timothy got admitted, he was happy and skipping into his hospital room.  And when we were told we could go home, he started crying and wanted to stay longer.  So, he was “feeling” fine then and now.  The concern was his counts.  He went in with Hgb of 5.5 and platelet of 15.  (normal Hgb for Timothy is above 10 and platelet 200-300).  He went in with anemia and thrombocytopenia.  With the blood and platelet transfusions, he left the hospital with Hgb of 8 and platelet of 47.  Still low, but much better.  Now, his body needs to respond to the therapy (IVIG) he received and produce more and not destroyed them.  Good news is his reticulocyte count went up from 5.4% to 7.2%.  This just means Timothy is producing more red blood cells.  We are still on hold for steroids.  Yay!  The plan is to wait and see what his body does.  We are going in for labs on Thursday and an appointment on Friday.  Hopefully, we will have all the results by then.  Thank you always for praying and showering us with your love.  We are forever grateful…

1 comment:

  1. So happy to hear that you are home!!! Timothy is such a strong boy, I have faith that all will come back to normal very soon and his counts will continue to improve.