Timothy has been feeling much better since my last post. He is not his 100%, but much better. His platelet count seems to be stable along with his hemoglobin, which is not bad but it’s not where it should be. We are praying that his platelet and HGB counts go up on its own without any intervention. Especially his platelet count. It is significantly lower than where it should be. So he has a lot of bruises these days :(. We also stopped his cyclosporine! Yay! This is his immunosuppressant he has been on since his transplant to prevent GvHD (Graft vs. Host Disease). Hopefully, all his excess hair will thin out :). Currently, he is on 1 med and we are weaning that as well. Please pray that his body will adjust well to being off cyclosporine. Thank you.
Since returning from Houston, we have changed our care to Children’s Hospital of Orange County (CHOC), from CHLA. There were many factors involved in this decision including our doctor’s input. We are very happy to be back at CHOC :).