Wednesday, June 27, 2012

Day +140

Timothy has been well.  Since he started back on the steroids, he has had no lung/breathing issues.  We have slowly tapered off the dosage and will continue to do so.  He is eating really well thanks to the steroids and has been active.  Of course, there’s always the mood swings and the sleep disturbances with the steroids, but it’s all manageable.  With the recent lung complications, our return home date has been delayed… maybe mid to end of July???  Probably more likely end of July at the earliest. 

Timothy has grown taller and his vocabulary has increased.  He can actually speak in complete sentences… his pronunciation is poor, but still understandable to me :).  He even dropped his nap.  Considering he is mostly home bound, there aren’t too many opportunities to expend his energy.

As for the rest of us, we are trying our best to cope with what has been given to us.  It’s been really hot and humid here, so outdoor activity is really out of the question.  All of us have been enjoying our multimedia entertainment a little bit more lately.  Lots of iPad, iPhone, computer/games…

Hope everyone is well.

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