I am back with an entry on Timothy’s condition. After a little break with last post, here’s a window into Timothy’s life. He takes 3 different meds. Two are shown right below. Both are liquid antibiotics dispensed with a syringe. He takes one for bacterial infections (Bactrim) and the other for fungal (Itraconazole or Sporanox). Since he is above average in weight and height, the dosage has increase several times. This is difficult because with each increased dosage, his body adjusts with some diarrhea and stomach upset.
The antibiotics are flavored, so Timothy doesn’t resist. But since it is sweetened, we thought he developed some cavities. By the way, Timothy got his first tooth very early, around 3 1/2 months. He now has 14 teeth. Fortunately, it was just discoloration from the meds, a side effect to taking antibiotics regularly.
Timothy’s 3rd medication is a shot, administered 3 times a week. We have a calendar to keep track of which thigh to administer it to. It is an immune boosting shot frequently used for patients with compromised immune system, i.e. cancer patients. The Interferon Gamma 1B is a very expensive medication. Per shot, it’s approximately $400. Research has shown it has been very effective in treating CGD patients.
The shot does not hurt Timothy. It’s subcutaneous, very similar to an insulin shot for a diabetes patient.